When our daughter, Evie, was born with CHARGE syndrome in 2011, she completely changed our lives. We were thrown into the world of caring for a medically complex child and talk about a learning curve!
Evie has had over twenty surgeries and spent about 10% of her first four years in the hospital. Since discovering and removing a birth defect in her small intestine in 2015, she has grown and thrived better than we ever could have imagined!
So that’s what you’ll get here now: my journey to becoming a mama bear, learning to advocate and fight for my daughter whenever and wherever she needs it. And hopefully I can share some of what I’ve learned!
Here’s some of my favorite posts over the years if you’re looking for a place to start: