Hey all! I decided to do a quick little shirt fundraiser for the CHARGE Syndrome Foundation! All proceeds go directly to the foundation to help support those with CHARGE syndrome in a variety of ways. Hopefully down the road as things with Evie settle even more, we'll be able to invest more time and energy … Continue reading Support the CHARGE Syndrome Foundation!
Month: October 2015
Why Our Special Needs Child Has Secondary Medicaid
We've learned a lot about insurance over the last several years and I just thought I'd share a bit of that side of things. I had NO idea about most of this before Evie was born and I'm guessing that's true for most the population. And I also know we're generally hesitant to share this … Continue reading Why Our Special Needs Child Has Secondary Medicaid
CHARGE Conference 2015
So one of our big summer adventures back in July was attending our very first CHARGE Conference. This happens every 2 years and is a gathering of those with CHARGE, their families, and professionals from all over the world. It was AMAZING! And overwhelming. That, too. But mostly just amazing. Most of our time was … Continue reading CHARGE Conference 2015
Airway Update and Giggling
It's been a while! And for good reason: we just haven't had much to update. I'll write up a post about some of our summer adventures, but we had no hospital stays, no surgeries, no major medical concerns of any kind and it.was.amazing. But we can't walk away from it all forever, so we headed … Continue reading Airway Update and Giggling
All That Hath Life and Breath 