Umm…

So yeah, we're home. Forgot to post. I knew I was forgetting something. Sorry, everyone! But yes, home. Doing well. Evie is thrilled to be back in her space again (as are the rest of us). She was actually discharged over the weekend, but we had an appointment on Monday, so we hung around town …

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Hanging Out with the Birthday Girl

First and foremost, I want to thank everyone who sent cards and gifts for our special birthday girl. I am overwhelmed by the sheer number of people who took the time to make her day enjoyable. Friday morning was a bit rough and I thought we'd just go downhill from there, but then the cards …

Evie is FOUR!!!!

Can you believe it???? It's not exactly the ideal setting for her 4th birthday, but she's still with us and growing and thriving and we're thrilled. Hopefully she's not in too much pain today and we can have a little fun. I had to make another video, of course, but I did it last week …

Fairly Good News

Well, I think we got fairly good news. Evie's small intestine looked pretty good. There was a small spot at the part that we worked on last time that looked like it may have been bleeding, but it was pretty mild. That can sometimes happen with a bowel resection, so they weren't too keen on …

She’s Back

They just took her back. PICC will be placed first and then surgery. Will likely be around 4 hours.

Waiting

The OR is delayed today so we're just waiting around, trying to keep the girls entertained until they come get Evie for surgery.

Surgery Today

Surgery is scheduled for 11:20 today for about 4 hours.  Please pray that we find the source of bleeding, that it doesn't require taking out too much more of her intestines, and that no damage is done during the surgery itself (which is always a risk when you're moving things around in there). It's going …

Upcoming Surgery

I apologize for not updating more, but we've mostly just been monitoring Evie. Last week however her hemoglobin dropped to 9.0 (from 10.0 a few days before) so we were squeezed in to see hematology locally to decide what to do. Since we want her hemoglobin levels nice and high before surgery, it was decided …