Sorry for the lack of updates, but the last few days have just been spent discussing what the next step is. It looks like they'll be doing a laparoscopic exploratory surgery on Monday morning. They'll make a few small incisions in her abdomen and put a camera scope in. Prayer requests: That we would FIND … Continue reading Plan
Cincinnati's transport team came to get us yesterday afternoon and Evie had so much fun on her very first plane ride! It was a very smooth trip. Evie struggled a bit with her oxygen levels, but then SHE asked me to put her on her cpap. She did much better with that on and I'm … Continue reading First Plane Ride
It's taking a bit longer to coordinate everything, so we won't be heading to Cincinnati until tomorrow now.
Insurance has approved the transfer to Cincinnati so they'll be sending a plane to come get us tomorrow. Evie's hemoglobin is still dropping slowly so it's just not safe to do an 11 hour car ride with her. We're about to start yet another blood transfusion as well so she's safe for travel. This is … Continue reading Off to Cincinnati
Third time is apparently NOT the charm. Scan didn't find anything. Not sure what the next step is, but will update when I know.
I apologize for never updating after the pill cam. We went home the next day since there was nothing left to do and Evie was stable. We were able to be home for at least a little bit before she started having black in her stools again yesterday. Her hemoglobin oddly went UP, though. Today … Continue reading Bleeding Round 3
Still no answers. The pill cam saw a few specs, but they're likely to be just specs and not actual damage to the intestines. She's stable now, so we'll head home tomorrow to await the next episode. Thanks for the prayers everyone. Evie's never been one to give up answers easily.
Placement went well. Prayers now that 1) the pill camera does NOT get stuck. If it does, it will need to be surgically removed, and 2) that we're able to finally locate the damage, and 3) that it is easily fixable damage. Thanks everyone.
The dummy pill went all the way through her intestines without issue so we're good to place the actual camera pill tomorrow morning. We'll stay in the hospital until it goes through and then (if she's stable) we'll head home and wait for the GI to go through the several thousand pictures. Hopefully he'll be … Continue reading We’re Go for the Real Thing
The Meckels scan came back negative which isn't surprising. We got the dummy pill placed, though it was a bit rough since it's so large. Her throat also looked very very swollen which I think is probably related to the hives. We'll just wait to see if the pill passes through and do a few … Continue reading Waiting