Thanksgiving

Thankful we're getting out of this place! Happy Thanksgiving, everyone!

Waiting

That's what we're doing right now. Waiting and waiting. Hopefully we'll have a care conference tomorrow or Tuesday to come up with a plan. Our concern is figuring out how such a generally weak and unharmful bacteria get into her bloodstream in large enough quantities to make Evie septic. Most people who get lactobacillus infections …

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PICC

Evie just got done getting her PICC and I'm waiting to see her. I know you'll all be shocked, but Evie's artery was wonky and they really got lucky in placing it. He said she shouldn't ever get one placed when a doctor won't be available to potentially use a guide wire.  She has sharp …

Lactobacillus

That's the bacteria in her blood. And yes, that's what you find in your yogurt. It's a bacteria usually found in the gut and rarely causes problems. It's definitely weird, so they called Infectious Disease. Once they looked at her history of recurrent intussusceptions, they felt it made perfect sense that some bacteria had escaped …

Sepsis

Unfortunately, Evie's blood work showed that her fever wasn't from a virus, but from possible pneumonia and a blood infection. We're treating with IV antibiotics and hopefully will know the specifics from the lab this morning. Her fever finally came down last night after being 101-104 since Thursday morning. We seem to have caught it …

Ups and Downs

Evie's test on Tuesday came back normal so we still have no answers. Since she was doing really well, we started working on weaning her off the TPN to go home, but Evie apparently wasn't ready and spiked a fever this morning. Poor thing is so worn out. So now we'll monitor this new turn …

A Rough Week

I apologize for the lack of updates this week. Sometimes, it's just too hard trying to put things into words. We still have no idea what is happening with Evie. Once again, all testing seems to show a perfectly healthy little girl. She is coming out of this episode and doing much better today. We …

Being Admitted

Well, Evie is going to be admitted. An abdominal ultrasound showed two intussusceptions that weren't locking in place, but just happening multiple times. At first the doctors said that that is totally normal and not concerning, but in combination with her symptoms, they're not sure. It makes sense to us since her symptoms are basically …

Leaving Early

Unfortunately, though Evie handled the respiratory side of this sickness beautifully with the help of the CPAP, she started vomiting once that subsided. We can't seem to get her back to full feeds and she's lost a lot of weight. We were supposed to head to Cincinnati tomorrow for follow-ups this week, but after she …