Still Home!!

I'm sorry I haven't updated. Evie has handled this sickness like a champ with the CPAP. She still needs to be on it almost round the clock to keep her oxygen levels up, but we haven't had to use any supplemental oxygen. She's definitely doing better, but it just takes her much longer to recover …

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Hoping to Stay Home

Friday night Evie started struggling with sickness. She's had a mild fever and lots of secretions all weekend  and this morning she's doing a bit worse. So far, she can maintain her oxygen levels while on the vent on CPAP settings and no supplemental oxygen, but we may need to add some O2 soon. Please …

A Long List

For a while now, I've been trying to work up the courage to compile all of Evie's diagnoses, scattered among 3 hospitals and 30+ specialists, into one master list for our giant book of Evie's Medical Stuff. I just really didn't want to see them all at once, staring back at me. It seems every …