Hittin' the road with this blurry, on the go, can't slow down cutie.
Month: August 2014
Evie's been doing much better, but we're debating if we should push for exploratory surgery to figure out why the intussusceptions are continuing to happen. It's so hard to know what to do. Ty and I are trying to get all our required vent education done, but with the intussusception scare and us both coming … Continue reading Still Here
The ultrasound came back negative for an intussusception, so now we just wait and observe. She's sleeping now, thank goodness.
Evie is all of a sudden in a lot of pain and it seems similar to the intussusception in July. They've ordered an abdominal ultrasound. Please be praying.
So yesterday we finally got a bed around 4pm. We were able to place her on the vent with CPAP settings (a trached child cannot really safely be put on just a regular CPAP machine so we need a home ventilator). She actually handled it really well last night and we're all really pleased. Well, … Continue reading The Plan
Just finished up a FEES swallow study where they put a camera up through the nose to look down the throat at the swallow. Ask me how fun THAT was! Ugh. It's all kinda complicated and I don't feel like typing it a out on my phone right now, but the basics are that Evie … Continue reading FEES
Trial and Error
Scopes are done and it's about what we expected. Her entire airway (nasal passages, throat, trachea) and lungs are very inflamed. In fact, they are MORE inflamed than they were in May. The big question is where is the drainage that's causing the inflammation. coming from. We're going to treat her like she has a … Continue reading Trial and Error
Back in Cincinnati
We're back in Cincinnati for scopes and testing again. Not much to say after our appointments today. GI is curious how Evie's stomach looks after the intussusception episodes. Pulmonologist is still very concerned about Evie's lungs, but won't really know what the next step is until after the scopes tomorrow. So we'll just see what … Continue reading Back in Cincinnati