Let It Go

Makes My Heart Burst

Took my girls shopping after an appointment yesterday. It's the first time Evie has ever walked around in stores. She LOVED it. And my heart was about ready to burst from happiness. There were many times in the beginning that I never thought we'd get this moment. Just a normal everyday kind of moment. Evie …

Advertisement

Just Intensity

Usually in life we gauge experiences on a kind of scale system. The good versus the bad. The sorrow versus the joy. We determine if something was overall good or overall bad by which was experienced more. And typically the two balance one another out some. A very good experience is lessened some by the …

Home

They sent us home! Our Vest will come tomorrow so our wonderful friends are letting us borrow theirs until ours gets here. Evie is doing great and we're so hopeful that this will make a big difference for her. "Suctioning" her trach. Silly girl.

A New Approach

Well, we're back in one of our absolute favorite places: the hospital. Ugh. We couldn't get Evie off oxygen yesterday morning and her lungs were in the beginning stages of sounding bad. Her bloodwork shows that she is fighting something off, but they're less inclined to believe it's a bacterial infection again. They took some …