Discharged! Since we were just going over to the Ronald McDonald House next door and Evie's home care nurse is with me, they let her leave instead of admitting her. She's doing great! Thank you for all the prayers.
Yay! Trachea was still just as open at 3.5mm, so they widened it to 4mm which makes it the same size as the rest of the airway. Nose was still wide open. Right ear tube fell out, but hole is still open, so they'll just leave it and watch it, maybe fix it down the … Continue reading Yay!
They took Evie back not too long ago. She was pretty anxious with the last procedure so we asked about doing some meds to help her relax. It made her very mellow so she didn't fight or hold her breath. Hopefully she doesn't even remember it. "Dude, my hands are huge."
There is nothing more wonderful than hearing the laughter of your child. I've been thinking, too, about how one of the things I've long grieved with Evie was missing out on all her little newborn sounds. Never in my wildest dreams did I think I'd get to enjoy them 33 months later, but Evie … Continue reading Laughter
Evie's been discharged and is doing great! Really great. Very minimal bleeding, hasn't needed any Tylenol since yesterday, and is back to her usual self. We're hopeful that the rest of the procedures will just be outpatient since she did so well with this one. Thank you all for the prayers!
Dilation went well. She had actually closed up a bit more from the last scope and they had a very tight fit with a 2mm tube. They dilated with the balloon and we're able to get it to where a 3mm tube fit loosely through. A normal 2 yo would have about a 4mm opening … Continue reading Dilation #1
This coming Monday, the 10th, Evie will have her first of four tracheal dilations in Cincinnati. We'll go in every 2 weeks, then have a 6-8 week wait until we do a scope and determine if the dilations worked well enough to avoid a full tracheal reconstruction. We very much covet your prayers on this … Continue reading Monday and Updates