The Most Beautiful Sound

About two weeks into Evie's jaw distraction, the sounds of her breathing began changing and we realized she was getting quite a bit more air in and out of her mouth. It sounded awful, actually, like she couldn't breathe, but we knew it was a very very good sign. We began wondering if a speaking … Continue reading The Most Beautiful Sound

Connor

The little boy I asked you to pray for has passed into glory. Please be praying for Connor's family as they grieve the loss of their beautiful and spirited boy. He will be greatly missed by all who met him.

Option 3

And option 3! Airway looks good, but instead of a tracheal reconstruction, they'd like to try ballooning with steroid shots into the tracheal scarring first. That will be every 2 weeks, 4 times, then 6-8 weeks with a smaller sized trach, and then 3-4 months with a capped trach (AND they want her to get … Continue reading Option 3

The Pros and the Cons of the Trach

This Friday we head back to Cincinnati for a scope of Evie’s airway. Now that she’s all healed up from the tonsils and jaw distraction hardware coming out, it’s time to assess where she’s at. The ENTs will look at all the areas we’ve fixed (bilateral choanal atresia, tonsillectomy, jaw distraction) and decide if her … Continue reading The Pros and the Cons of the Trach

Prayers Needed

A little boy with CHARGE that we've come to know and love is fighting for his life right now. He needs a miracle. Please pray with us for him, his parents, and the medical team. Thank you, everyone.