Our New Family

We got home last night and Evie had a good night. We're so grateful this recovery has been so smooth so far. On our drive home yesterday, we passed through a town where one of Evie's CHARGE siblings was in the hospital. We've been praying for him for awhile and he's had a really rough …

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Discharge

Sorry for the lack of updates! I could barely keep my eyes open last night. Evie is doing pretty well and slept hard last night. They're already working on the paperwork for discharge so we should be heading back to the hotel soon. We'll try to head home tomorrow then. Her mouth is pretty bloody …

Done

Plastic Surgeon just came out to talk with us. Everything went well with the hardware removal. They'll leave the pin sites open to drain rather than stitching them up, but they should heal up nicely now that her body isn't rejecting the foreign objects. He emphasized how good her airway looks now. Said you can …

Tonsils Out

ENT is done. Tonsils are out. Nose is still beautifully open. Ear tubes had some granulation tissue growing around them so they were a bit cockeyed. They cleaned them up and put them back in place. Upper airway looks very open and anesthesiologist said it is easy to see now as compared to before. One …

Started

They just took her back. We couldn't be with her as she fell asleep again, so it was a pretty tearful goodbye. So terrible having to hand your child off as they reach for you. Surgeries are scheduled to take 136 minutes, but we're guessing it will probably be about four hours until we can …

Sneaky Evie

Sneaky Evie Surgery is at 7:30 tomorrow morning. We have some nasty weather heard our way, so please be praying for safety. We will keep the blog updated as much as possible tomorrow.