Back in April when we first went to Cincinnati Children’s and Evie had all those scopes done, they mentioned that her tonsils were overlarge and would need to be removed. I wasn’t necessarily surprised since most CHARGE kiddos need to have them out, but I couldn’t remember ever SEEING her tonsils. It was just information that shoved to the side as we dealt with the next immediate need.
Fast forward several months and about 2 weeks into Evie’s jaw distraction, suddenly we realized we could see her tonsils! As we pulled her jaw forward, it allowed her tongue more room to lie flat. Her tongue was actually shoved up back into her throat and blocked the view to her tonsils, but now we can see them and they need to go! They are HUGE! I feel so terrible that she’s had those monsters in her throat this whole time. I don’t blame her for not wanting to swallow!
When it was first mentioned to us that they were an issue, I wondered if we could try some other remedies first. Were there allergies aggravating them? Could we eliminate some foods? But what it really came down to is that even if there were other issues we could fix, we simply cannot leave tonsils that could swell up and block off her airway. I don’t actually believe that they are swollen as much as they are just big, though. I mean, the rest of her airway is abnormal, why wouldn’t her tonsils be, too?
At this point, they will NOT be removing her adenoids, too. Since she already has issues with scar tissue in that area due to the choanal atresia, the doctors would prefer to just leave it alone unless we absolutely have to.
Surgery is rescheduled for November 18th and this time we are just staying in isolation until the surgery. I’m sorry to everyone that we are ignoring. I promise, it’s not you! Once we’re done with this surgery we might relax a bit, but by then we’ll be in full blown sickness season, so I doubt it. So I suppose, we’ll just see everyone in the spring! Unless we have another surgery scheduled, that is.