Like we expected, they want us to turn the screws for one more week. Her X-rays looked really good and her airway has really opened up. In fact, she’s at the perfect normal stopping point, but because we want to really really really open the airway, we’re going to go a bit beyond normal. It’s also possible that her jaw will not grow with her, so the farther out we go now, the longer we can go before another jaw distraction.
We also learned that they will NOT scope her before removing the screws when we’re done so we need to figure out how to change the gtube without anesthesia. Our big question right now is whether or not we should try out a different style called an AMT mini one that has a balloon instead of a stopper like the Bard. The balloon is flatter so we’re hoping we wouldn’t have the same issues as before, but they’re consulting with GI to see what he thinks. Hopefully we’ll know by tomorrow.