One More Week

Like we expected, they want us to turn the screws for one more week. Her X-rays looked really good and her airway has really opened up. In fact, she's at the perfect normal stopping point, but because we want to really really really open the airway, we're going to go a bit beyond normal. It's … Continue reading One More Week

Update on Evie and Ty

Follow up appointment tomorrow afternoon.

A Bit of Progress

I tried to take a profile picture of Evie, but she's not too thrilled with me trying to position her head so this was the best I got. Hopefully you can see that we've made a bit of progress. Not long after my last post, Evie threw a temper tantrum because Daddy wouldn't give her … Continue reading A Bit of Progress

Follow Up #1

So I started typing this, stopped to feed Evie and her gtube broke! Are you kidding me????? It still works, but doesn't close anymore so we had to rig it up so her food doesn't just leak back out after feeding. We have a spare with us, but this type really should be removed and … Continue reading Follow Up #1

So…How’s She Doing?

Umm...fine, I guess. She's more or less acting like herself during the day. She's watching a lot of movies and hanging out. We're turning the screws to separate the bones 1/2 mm twice a day. But... Nights are still pretty rough and sometimes the pain meds we have just aren't enough. She's pulling her hair … Continue reading So…How’s She Doing?

Heading Out!

Our Chubby Bunny Champ is ready to head out! Follow up next Wednesday!

Still Here

Evie is slowly, oh so slowly, getting back to herself. She's still pretty miserable and we're trying to keep her pain under control without IV morphine, but the last pain med (besides Tylenol) we tried made her throw up. Hopefully we can find a good fit for her today. Once we get her up closer … Continue reading Still Here

Uncomfortable

We're up in her room now. She's pretty uncomfortable and we're just trying to keep her calm. You can see one of the distractor screws sticking out from her chin (that long skinny metal piece). And the bump on the other side under the skin. We haven't attempted to clean her up yet, so she's … Continue reading Uncomfortable

Done

Surgery went well. She's in recovery now and we're just waiting to see her. Thank you for the prayers. Please keep them coming as soon her face will start swelling and will be at its worst on Wednesday. Hopefully she's pretty numb for a awhile.

Nose is…

OPEN! ENT just took a look and her nose is still completely open. Ears are looking great, too! Love that her body is accepting these changes instead of continuing to fight back so scar tissue.