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We got home yesterday afternoon and Evie is very happy about it! She needed oxygen overnight, but seems to do fine when she's awake. Hopefully we can wean her off the O2 over the next week or so. She lost about a pound since she didn't get feedings for so long, but I think she'll …

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Perking Up

After a transfer to the PICU (intensive care) on Monday morning, and about 18 hours on 80% oxygen, Evie finally turned a corner and started perking up. We first attempted to take her down to 60% Monday night, but she would have NONE of it so back up to 80%. We worked on weaning her …

Back in the Hospital

This time for parainfluenza (which usually manifests as croup). Aleyna had a fever for about five hours with a sore throat then was back to herself last Monday. Early Wednesday morning, Evie spiked a fever and then started showing signs of a trach infection. We did a culture to figure out which antibiotic to use, …

Plumping Up

She's starting to fill out again, thank goodness! She's up to 18 pounds 12 ounces already (she was about 16-16.5 lbs), so just a pound more to get to where she was back in April.    

We’ve Got an Answer and the Next Step

Allergies! Yep, back to where we started 6-7 weeks ago. Isn't that life? So, we got Evie tolerating a slow continuous feed of plain breast milk and then they gave us a pass to head over to the Ronald McDonald House for a few hours to see how she did. It was supposed to be …

Trying To Figure Things Out

Evie's scope went well yesterday. The good news is that her nose is still very open, but the bad news is that we still don't know why she's throwing up so much. It really is phenomenal news that her nose hasn't closed up. That means that once we get this weight loss issue figured out, …

Need Prayers

Here's the situation: Evie's still rapidly losing weight. She's lost another half pound since Wednesday. The most concerning part is that she is getting 60-70% of her normal calories so she shouldn't be losing weight this fast. We're still planning on going to Cincinnati and hopefully the scope will tell us what's going on. If …