We got home yesterday afternoon and Evie is very happy about it! She needed oxygen overnight, but seems to do fine when she's awake. Hopefully we can wean her off the O2 over the next week or so. She lost about a pound since she didn't get feedings for so long, but I think she'll … Continue reading Home


Need Prayers

Here's the situation: Evie's still rapidly losing weight. She's lost another half pound since Wednesday. The most concerning part is that she is getting 60-70% of her normal calories so she shouldn't be losing weight this fast. We're still planning on going to Cincinnati and hopefully the scope will tell us what's going on. If … Continue reading Need Prayers