A Step Backwards

We finished Evie's antibiotic for her trach infection on Saturday, but Evie is still not even close to being back to her baseline. She's maintaining her oxygen levels and doesn't have a fever, thank goodness, but her trach secretions are still very thick, she's not tolerating her feeds yet, and she's pretty lethargic. We've put …

Advertisement

Allergies? Trach Infection? Who knows!

I'm sorry that I've dropped completely off the radar here. We've had a rough few weeks of trying to figure out yet another part of Evie's story. When we were in Cincinnati, Evie was doing soooo well. So so incredibly well. Especially after her nose was opened up. She rarely vomited and when she did …

The Help*

When Evie first came home, we were pretty much on our own for her care.  She needed suctioning every 1-2 minutes, her feedings took over an hour to do, we had to feed her 2-3 times at night, and she was pretty convinced that “night” meant 3pm-3am.  I’m not sure we ever slept.  During the …

Evie is TWO!

I've been trying to figure out what to write for Evie's 2nd birthday for awhile now and the words just weren't coming. She's come so far and blessed us so much. It's been a hard two years, but an amazing two years, too. I decided a video would capture her progress the best so here …