Well, we are here and have a busy day ahead of us.
Evie sees cardiology at 7:30 this morning. Please pray that we will either feel comfortable with Evie’s heart just being a bit weird, but fine or we’ll find whatever it is that is causing some of her issues. And if there is a problem, that it is minor and fixable.
Swallow study will be done at 11am. Pray that this isn’t too traumatic for Evie. She can’t actually fail the swallow study (it looks to see if she is allowing food into her lungs) because her trachea is blocked, but pray that it gives them the information they’re looking for. I’m just dreading them forcing Evie to swallow nasty stuff. She HATES these.
Anesthesia consult at 2:30pm. I suppose just be praying that we feel good about allowing this team to care for Evie while she’s under anesthesia. It’s a hard thing as a parent to pass your child off to a stranger whose sole job if to keep them alive during surgery. And Evie’s complexity makes it a tricky job.
That’s our day. Long and busy. Also, please pray for me. I haven’t been able to sleep well the last few nights and am starting to feel it. Just pray I can stay healthy and focus on what needs to be done during the day.
Thank you everyone! We so appreciate your support and prayers!