Evie’s New Walker

We bought Evie a walker this past week so we would have it for Cincinnati. I'd like her to do as little crawling as possible while we're there! Ick. Germs. We got it Tuesday evening and Evie cried horribly when she saw it! Poor thing. There were some major temper tantrums! In her session with …

Advertisement

“Talker” Update

We finished the trial with the NovaChat 7 last month…I think. The days all blur together. We had it for a month, but it was pretty clear early on that it probably was not going to work for Evie. We hoped we could make some changes, but we couldn’t fix the main problem: Evie couldn’t …

647 Days

That's how long we made it until Evie got her very first trach infection: last week. That's a big deal, people.  Some kids get near constant trach infections.  Also, the trach culture we took showed lots of white blood cells so Evie's body is fighting it like it should be. That's my positive spin on …

Back to Her Old Self, Just Lighter

If only she could gain weight back as quickly as she gets her energy back!

You’ve Got to Be Kidding Me

We haven't gone anywhere. We haven't interacted with anyone. We haven't had any appointments. Everyone else is fine.   And Evie is sick.   Seriously??????

Scared

I’m sorry I haven’t written much on here lately. I have a good reason.   I’m scared.   We head to Cincinnati in about three weeks to start the discovery process that will hopefully lead to Evie eventually having tracheal reconstructive surgery and trach removal. We’ve NEVER had to wait more than 2 weeks for …