We're in recovery now with Evie. All the testing and the gtube placement went smoothly and she's waking up now. We'll know results hopefully sometime next week.
We have finally got Evie's tests scheduled for this Friday, the 30th. It will be a very busy day and starting very early. She will be put under general anesthesia first, then she will have an MRI that will check her brain, ears and face. Then a CT scan (formerly known as CAT scans) will … Continue reading March 27, 2012
Evie's pediatrician wanted to see her yesterday since she was struggling so much, so we made the trek up there. She had been having some wheezing in her right lung, but fortunately that seems to be gone. Her oxygen saturation is still not where we would like it though. Typically Evie sats around 99-100 (perfect), … Continue reading March 22, 2012
Evie is throwing up a lot again. She just has so much drainage from another cold, it's filling up her stomach. Add to that the incessant coughing and she just can't keep her food down. Poor thing. Please be praying she gets past this quickly. Also, Evie has a strange sore/lump by her trach that … Continue reading March 20, 2012
Please be praying for Evie. She has a fever and lots of drainage. Poor thing needs constant (and I do mean constant) suctioning, is throwing up, and is generally just miserable. Her oxygen saturation is a bit lower than it usually is and her heart rate is much faster. Please just pray she gets over … Continue reading March 17, 2012
Good news! Evie has gained 1/2 pound in the last month! That brings her right around 14 pounds!
I'm afraid today did not go well. In her esophagram, I first tried to force feed the barium to her in a bottle, but she refused to swallow. Then we put some barium in through her gtube and tried to get her to throw up, but she wouldn't. And lastly we tried putting a tube … Continue reading March 9, 2012 B
We would appreciate your prayers today. We are doing an esophagram later this morning to check a few things on Evie. In this test, they use barium to see her esophagus. This means she will have to either be force fed a bottle or we put the barium through her gtube and hope she throws … Continue reading March 9, 2012