January 28, 2011

We saw Evie's ENT last week to check on her ears and they are finally looking clear! We're hoping this set of tubes last longer than the first set, but we fully expect to do the procedure at least once more this year because of Evie's rapid scar tissue growth. Because the fluid was finally …

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January 6, 2011

We had been noticing some irregular hear rhythms with Evie, so we had the cardiologist put her on a heart monitor to record everything for 24 hours. We spoke to the cardiologist about the results of her heart monitoring. He said she has a "wide variability in her heart rhythm." His opinion is that this …

July to December 2011

Tuesday, July 5, 2011 5:23 PM, CDT               SHE'S HOME!!!!! Thursday, July 14, 2011 12:08 PM, CDT After being with us on and off for over 9 weeks, my mom finally took off to go home. We could NEVER have done this without her! Saturday, July 23, 2011 4:43 PM, CDT “Why go I mourning?” …

NICU Timeline

Sunday, May 8, 2011 2:23 PM, CDT Our little Evelyn has made her appearance, but unfortunately has been sent to a NICU in Des Moines with breathing problems. Ty was able to accompany her right away and Megan is joining them shortly. Please be praying for our little girl. She seems to be doing well …

CHARGE Syndrome

Since her birth, Evie has struggled with routine procedures and new problems seem to crop up one right after another. What we originally thought would be a 2-3 week stay at the NICU slowly morphed into a 2 month stay and what we had hoped would be simple surgeries became complicated rather quickly. In the …

All That Hath What?

Our first daughter, Aleyna Hope Clara (meaning "Bright Hope") has a hymn with her name, Great is Thy Faithfulness (from the line "strength for today and bright hope for tomorrow") and little Evelyn also has a hymn.  We had a few names that we liked, but Evelyn was my first choice.  In the chaos of …